Want to learn more about advocacy?

John and his family will join Dr. Rosen and Amy in a July 28th advocacy “Lunch and Learn” session at Children’s Hospital Boston, where they will talk about their experience at Family Advocacy Day and the role families and providers can play in influencing public policy. Wednesday, July 28th 12:30 – 1:30pm Pavilion Dining Room, [...]

Reflecting on Family Advocacy Day ’10

Attending Family Advocacy Day for Boston Children’s Hospital was life-altering for our entire family. Zeb has been able to realize that though his health issues may be scary, he has the ability to use his voice and share his experience so he can impact the lives of other children who need the incredible medical services [...]

Our All-Star families in the media!

Today’s MetroWest Daily News features an article about John and his family, and their participation in Family Advocacy Day. The Brattleboro Reformer also highlights Zeb and his family’s trip to DC in support of children’s hospitals. Thank you for being our champions!

Thank you from John

We had a great time in Washington D.C. and want to thank you again for the opportunity to show our support for Children’s Hospital. It was a pleasure to meet and work with you and Amy, you’re both very dedicated and passionate about Children’s Hospital and you could see it in your work.  They are [...]

Celebrating our DC experience

Meeting with the staffers, Representatives and Senators gave me real insight into how government works and a much greater appreciation of just how fortunate we are to live in a country and an era such as ours. In much of the world, and throughout most of human history, rulers were people best avoided who mostly abused their [...]

Raising our voices in Washington

I am so proud of the families and providers who spent the day on Capitol Hill today. They were tireless advocates for children and children’s hospitals! We met with 2 Congressmen, 3 Senators and many congressional staff. Along the way, we also met one kitten and one dog – both in Senators’ offices. John, age [...]

Summing up Family Advocacy Day

What do I think about this experience? Family Advocacy Day was great!

A lasting impression

Our trip to Washington DC with Boston Children’s has been amazing. To be asked to share Zeb’s story with those on Capitol Hill is one of our most memorable family trips. Senator Leahy, Senator Sanders, and Representative Welch care about children and their health concerns. I felt listened to by them and their staff. I’m [...]

Zeb’s thoughts mid-day

I’m having a lot of fun because I have never been here before. I liked meeting my Senator and Congressman because they are really nice. I liked getting my photo taken too.

And we’re off… to the Hill

Just a quick note to let our followers know that we are finishing breakfast at the hotel and gearing up to move the group of families and pediatric providers to Capitol Hill! We have 9 legislative meetings set up for the delegation from Children’s Hospital Boston. We plan to visit with Members and staff in [...]